During this 10 days I started to investigate a bit more and came across a website called http://www.itsan.org/ . It gave me insight and I found hundreds of others going through the same ordeal. It frightened me even more to see the pictures and symptoms of others but what can I do but "suck it up!" I prepared myself and started again.
Holy crap! Do not do this if you have dependants, you will need a very strong network to get through because most of us are bed ridden for the first two months. I was lucky enough to have an amazing mother who stepped into my shoes and took over. Mum you are amazing! Also consult a doctor if you can find one and get on support groups they are worldly with information to help you through.
Its kind of a blur now, but mostly I remember being in the bath for hours to ease the pain and lying in bed. Eating habits were normal but the weight was flying out the window. Ok at this rate Im going to be Kate Moss before the end of the month I was thinking! My start weight was 69kg and Im 170 cm to give you an idea of proportions. Sleep? Well forget about it, there was hardly any. The sweating kept me up and the itch was insane. If I could of scratched my bones I would have, it was just crazy. I was careful not to use my nails on skin but nails on clothes to help not break the skin. In the end I chopped them off as close to the finger as I could. Then its like torture because there are no nails to ease the itch. Catch 22 yeap!
Overnight my skin became extremely dry, so by the morning I was like the Hunch Back of Notredame getting straight to a warm oil bath. Yes I was a sight! Extremely painful, everything was locked into place until the bath. Then loads of moisturising. Get that vacuum cleaner out too, the shedding skin will be everywhere and for me in a house of floorboards, well the kids thought it had been snowing... So things you will have to endure are and you may not get everything I did, everyone is different.
* Body temp- I'd have freezing calves and feet, but crazy hot torso and freezing head. But non stop shivering all over..So heat pack on feet with bed socks and wrapped in a blanket while mum was sitting in summer clothes.
* Oozing Ears- Especially at night I could feel dripping coming out of my ears with a cracking sounds. YES foul!
* If I scratched I would oozzzzz a clear liquid. Not infection just wet.
* Flaking skin and loads of it, get the bucket out to prepare your self. I used the vacuum cleaner every morning to clean the bed out.
* Swelling everywhere. This made it difficult and painful to bend my knees and elbows. Neck was stiff and hands too. My ankles would blow up and would throb, especially at night.
* Weight loss..yippee for those who need to loose it and for those who dont make sure you eat properly and keep healthy. Keep an eye on your weight loss so you dont get to underweight.
* Itching and burning of the skin. You may look like a cherry tomato
* Shaking like Elvis. I couldnt work out if I was hot or cold at times.
* Lymph Nodes- Mine blew up to golf balls and were painful and throbbing. I have them everywhere.
* Hair Loss- girls prepare yourself, your hair may start to thin.
* Clothes- I couldnt tolerate anything but pure cotton on my skin and on really bad days I would walk around in nothing but cotton knickers.
* House bound- feeling ugly and smelly and not being able to wear normal clothes, I found comfort in every TV show I could get my hands on and movies. Facebook was a good outlet too!
*Overall Pain- The pain from the weird tingles and burn was in just terrible. Even to lie down was like having razor blades slicing my skin. Keep those pain killers handy people.
* Looking many years older than you are. The swelling causes huge winkles and creases in your skin. This will apparently go down as the swelling goes and the itching stops.
*Blurry Vision- For me I got blurry vision. I think it was generally the swelling in around the eyes and the tightness it created. Very hard to blink!